How Parents of Students with PANDAS or PANS Perceive the Educational Process
Patricia Rice Doran, Ed.D.
Towson University
Elizabeth O’Hanlon, Ph.D.
Howard Community College
Abstract
This qualitative study examined parent perceptions of the educational process for their children who had been diagnosed with Pediatric Autoimmune Neuropsychiatric Disorders Associated with Streptococcal Infections (PANDAS) or Pediatric Acute-Onset Neuropsychiatric Syndrome (PANS). In recent years, PANDAS and PANS, conditions in which an overactive immune response causes neurologic and psychiatric complications, have received increasing research and public attention. While the impact of these conditions on school performance has not been systematically studied, it is hypothesized to be substantial, given the intense and disruptive nature of symptoms. This study analyzed data from interviews of twelve parents of children with PANDAS or PANS in order to describe their perceptions of the educational process. Results indicate that parents saw substantial overlap between home and school functioning, that PANDAS and PANS were extremely stressful to the nuclear family, and that parents reported declines in student attendance, academic performance, and behavioral functioning.
Read or Download
To Read this Article - or Download this Article (login required)
To Download the Entire FALL 2019 Issue of JAASEP - (login required)
NASET Members - Login to Access These Files.
Not a Member?
If you are a member of NASET, please login to freely access this and all archived articles of JAASEP
If you are NOT A MEMBER of NASET you may purchase this article of JAASEP for $5.95 (use the "Buy now" button below):
OR Buy the entire issue of JAASEP FALL 2019 for $24.95. Use the BUY NOW button below:
OR - Join NASET and have access to this & ALL PAST ISSUES of JAASEP - JOIN NASET