The characteristic feature of epidermolysis bullosa (EB) is blistering in the skin. Some forms of the disease may involve the gastrointestinal tract, the pulmonary system, muscle, or the bladder. Most forms are evident at birth. This disorder can be both disabling and disfiguring, and some forms may lead to early death. The disease results when skin layers separate after minor trauma. Defects of several proteins within the skin are at fault.
Links to Epidermolysis Bullosa
- Overview of Epidermolysis Bullosa: Overview of this condition including background, frequency, prognsis and more.
- The Epidermolysis Bullosa Web Ring: The Epidermolysis Bullosa WebRing is designed to bring together EB websites on the WWW.
- Epidermolysis Bullosa Home Care Program: The seriousness of the disease and the subsequent effects on the patient are largely individually-determined and therefore not suitable for a general description. The information described should therefore be regarded as the background information which is essential to provide an outline of treatment, nursing, care and support of the individual patient, to inform the patient and to draw up an individual care plan. This site deals with the way in which treatment, nursing, care and support may be implemented.
- Support information on Epidermolysis Bullosa: includes orgnaizations, links, articles